| Members Login |
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| PHACE Syndrome Community |
| Forum | Topics | Posts | Last Post | |
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| MESSAGES FROM PHACE COMMUNITY ADMINISTRATION | ||||
 | ANNOUNCEMENTS FROM PHACE SYNDROME COMMUNITY - Members Only | 6 | 28 | |
| NOVA - Announcements and Important Information - Members Only The National Organization of Vascular Anomalies is a patient support, advocacy and educational agency for those affected by hemangioma, vascular malformation, rare benign tumors and many related syndromes. http://www.novanews.org/ | 9 | 26 | |
| RESEARCH AND STUDIES Information regarding current research in PHACE will be posted here | 6 | 7 | |
| MEMBER SUPPORT | ||||
 | PHACE SUPPORT FORUM - Members Only MAIN MESSAGE BOARD | 480 | 4485 | |
| THE ANYTHING GOES FORUM - Members Only PICTURES, VIDEOS, RECIPES... ANYTHING NON-MEDICAL | 35 | 189 | |
| SPECIAL SENTIMENTS - Members Only Special form for those who are in need of thoughts & prayers for you or others. | 27 | 211 | |
| DATES TO ADD TO THE CALENDAR - Members Only Request for appointments, surgeries, special events, tests, birthdays, anniversaries or anything you want added to the calendar | 27 | 58 | |
| ALL ABOUT OUR CHILDREN | ||||
| OUR STORIES AND INTRODUCTIONS - Members Only Please take a moment to introduce yourself or your child | 25 | 75 | |
| CHILDREN'S PROFILES - Members Only Please post your child's PHACE profile in the example given to help others in similar situations look for support. | 22 | 26 | |
| OUR PHOTOS - Members Only Please feel free to start a thread for your child's photo album.
To create an album click "attach photos at the end of the your post and upload.
Users can view photos as an album by clicking on the first photo | 36 | 49 | |
| PUBLICATIONS & MEDIA | ||||
| COMMUNITY KIDS IN THE NEWS! Check out televisions and newspaper articles of some of our community kids and parents! | 5 | 19 | |
| HEMANGIOMAS in the News | 2 | 4 | |
| PHACE In The News - Members Only | 4 | 4 | |
| PHACE SYNDROME Publication | 11 | 11 | |
| ARCHIVED PAST FORUMS | ||||
| ARCHIVED: MSN PHACE group posts 2004-2007 PHACE Syndrome Support Group. Created by Cassandra Swan (first adult diagnosed with PHACE SYNDROME) | 34 | 34 | |
| ARCHIVED: MSN PHACE group posts - Members Only October 2006 - November 2008 PHACE Syndrome Community Private group created by Jen Duncan (Quinn's mom) | 1096 | 3265 | |
| ARCHIVED: MSN Hemangioma group posts 2003-2008
Posts related to "PHACE SYNDROME" from MSN HEMANGIOMAS GROUP. | 598 | 653 | |
| CONFERENCES AND GROUP GET TOGETHERS | ||||
| 2007 NOVA CONFERENCE - Members Only | 1 | 1 | |
| 2008 PHACE CONFERENCE - Members Only Hosted by The National Organization of Vascular Anomalies and the Texas Children's Hospital. The Conference was held on Novemeber 5-8 in Houston Texas | 5 | 6 | |
| LINKS AND HELPFUL INFORMATION | ||||
| HELPFUL INFORMATION - Members Only | 17 | 26 | |
| VASCULAR ANOMALY CLINIC LOCATIONS - Members Only | 6 | 9 | |
| Forum Statistics |
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Registered Members: 94 Topics: 2,452 Total Posts: 9,186 41 user(s) visited this forum in the past 24 hours The most users ever online was 7 member(s) and 0 guest(s) at 07:34 PM Sep 22, 2009 |
| Community Funding |
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This is a community funded forum. The contributions of our members help keep this forum ad-free. Thanks to Tiff and Matt, our most recent contributor. contributeThis forum currently has a credit of $2.81. To keep this forum ad-free, $2.14 is still needed for the next month. |
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